Tuesday, November 5, 2013

system reboot, taking back my own

I naively walked towards the abyss with the greatest of intentions, and as my feet touch the edge and the earth crumbles beneath my feet, sand pouring into the pits of hell, I realize my grave mistake and slam down the reboot button. Please oh please oh please work, I cry in despair, cursing myself for my decisions. Shoulda' known better. But  I will stop blaming myself and simply hit REBOOT and take back my child from the abyss.

My dearest son has hearing loss from ear infections (not 'permanent" but he has never had full hearing) and thus a speech delay. I recognized it at almost age two and was the pro-active rockstar of a parent, getting him help right away, in his early most formative years.

It took a half a year navigating red tape to get any help, but now he has an early intervention teacher, an awesome lady who I have nothing but kind words for, who shows up 2 - 3 times a month at our home to do developmental activities with my son. I can't say it is or isn't helping but he enjoys doing puzzles her so I am happy.

Until now.

I have to tell her soon, "it's not you, it's me and we're over" and I mean every word.

My son is lined up for an IEP through the county and school district and can attend pre-school (at age 3!) every day, half day, for FREE. How awesome is that?  But I have put thought and research into it and I am becoming "that parent", that does NOT get their child special ed services. After all my efforts and good intentions and desire to help my son, I am taking back my child before it is too late.

If he goes on an IEP and thus into that pre-school, I must fill out district enrollment forms and connect that data, and his IEP, with his health records. With P - 20 and the 400 data points of Common Core and a human capital management big Brother world occupying that abyss, which is reality, I am saying f$#^ no and removing my child.

There is no way in hell I am having his work place or college know and discriminate against him or give preferential treatment because he had an IEP. He will not be pigeon holed and sent on a specific, less-than academic pathway via social efficiency because of an IEP. Sure, you might say, you are a wacko and this could never happen. But I have done my fair share of research and all the data will exist so that all there is left to do is a click of one button and bam! Discrimination for life. I have worked with school data systems extensively, so when I say I know, I know.

I am taking back my child and will give him the special services he may need at home, away from prying eyes.

I thought at first, sure, I will just decline most info/data gathered and let my son attend pre-school. I wll demand upon entrance to kindergarten that his IEP NOT follow him. Problem solved right? wrong.

Did you know the districts have their cumulative record, the paper one (now often digitalized) and ANOTHER SECRET FILE?!?!?!?!  The speech therapist said sure, I can demand his IEP not follow him in the cum' file but the district has "other files" that follow him. She did not know the specifics but assured me they exist for each child.

I am not even putting him in pre-school or on an IEP because of the P-20 SLDS tracking system. How my son acquired speech at age 3 is no one's flipping business but mine and his.

I hate myself for even putting him on an IFSP. Stupid stupid me, the IFSP was my ticket and paper trail into the abyss. I hope a full system reboot and removal from the system will erase my trail permanently but I know there will always be a trace, somewhere. I had the best of intentions and screwed up. But can you blame me? I merely wanted to help my son, my world.

disclaimer: I still support IEPs for many kids. Just not my own.

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